Year: 2017
Type: article
Abstract: Understanding the types and magnitudes of bladder cancer (BC) survivors’ unmet needs and their associated factors is critical to optimizing health care planning for newly diagnosed patients. Unfortunately, measures that assess BC patients’ specific needs are lacking. This study examined the psychometric properties of a new needs assessment survey (BCNAS-32) for BC patients that we developed to address this gap. The BCNAS-32 was based on expert opinion, in-depth interviews of BC survivors and informal caregivers, and literatures on BC outcomes and unmet needs. BC survivors (n=159) were recruited from the Bladder Cancer Advocacy Network (BCAN) to complete a questionnaire that included the BCNAS-32, the supportive care needs survey (SCNS-LF59), functional assessment of cancer therapy bladder cancer scale (FACT-BL), hospital anxiety and depression scale (HADS), coping (BRIEF COPE), social provisions scale (SPS),and general self-efficacy beliefs (GSE) scale. Internal consistency of the BCNAS-32 was examined using exploratory factor analysis, and convergent and discriminant validity analyses. Thirty-two of the 92 items developed were selected by exploratory factor analysis constituting 7 subscales (psychological, health system, physical and daily living, patient care and support, logistics, communication with providers, and communication with partners) with high internal consistency (α range:0.89-0.97)and for the total scale (α=0.94). There was strong evidence of convergent and discriminant validity of the BCNAS-32, as indicated by moderate-to-high correlations with SCNS-LF59 (r=0.90; p<0.001), HADS(r=-0.76; p<0.001), GSE (r=-0.60; p<0.001), SPS (r=-0.66; p<0.001), and Brief COPE scales (r=0.58, p<0.001). These findings suggest that the BCNAS-32 provides a reliable and valid index of BC patients’ needs.
Source: JOJ Urology & Nephrology
Author: Nihal E Mohamed
Institution: Icahn School of Medicine at Mount Sinai
Language: English
Topic: Cancer survivorship and care
Subfield: Oncology
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Awards: G2800195642, G4119534169, G8416833428
OpenAlex ID: W4390769730