Comparing Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment -- The ENGAGE HU Study
Year: 2024
Type: report
Abstract: What was the research about?In sickle cell disease, or SCD, red blood cells change shape and block blood flow, causing pain and damage to the body.Hydroxyurea is a medicine that helps keep red blood cells healthy and reduces pain and damage from SCD.But some people may have side effects or other problems when taking this medicine.National guidelines recommend using shared decision making, or SDM, to discuss treatment with hydroxyurea.SDM helps patients and clinicians, like doctors and nurses, make decisions about treatment together.In this study, the research team compared two ways to support SDM use: How can people use the results?Clinics can use results when considering ways to support SDM about treatments for SCD.
Institution: Cincinnati Children's Hospital Medical Center
Language: English
Subfield: Genetics (clinical)
Field: Medicine
Domain: Health Sciences
Open Access status: gold
OpenAlex ID: W4392155072