Sharing brain imaging data in the Open Science era: how and why?
Year: 2024
Type: article
Abstract: The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.
Source: The Lancet Digital Health
Authors: Kathrin Giehl, Henk-Jan Mutsaerts, Kristien Aarts, Frederik Barkhof, Svenja Caspers, Gaël Chetelat, Marie-Elisabeth Colin, Emrah Düzel, Giovanni B Frisoni, M Arfan Ikram, Jorge Jovicich, Silvia Morbelli, Wolfgang Oertel, Christian Paret, Daniela Perani, Petra Ritter, Bàrbara Segura, Laura E M Wisse, Elke De Witte, Stefano F Cappa, Thilo van Eimeren
Institutions: Forschungszentrum Jülich, University of Cologne, University Hospital Cologne, Amsterdam Neuroscience, Amsterdam University Medical Centers, Vrije Universiteit Amsterdam, Amsterdam UMC Location Vrije Universiteit Amsterdam, European Brain Council, UCL Queen Square Institute of Neurology, University College London, Düsseldorf University Hospital, Heinrich Heine University Düsseldorf, Inserm, Normandie Université, Cyceron, Université de Caen Normandie, Otto-von-Guericke-Universität Magdeburg, University Hospital of Geneva, Erasmus MC, University of Trento, Azienda Ospedaliera Citta' della Salute e della Scienza di Torino, University of Turin, Philipps University of Marburg, Heidelberg University, Central Institute of Mental Health, Medizinische Fakultät Mannheim, Einstein Center Digital Future, Berlin Institute of Health at Charité - Universitätsmedizin Berlin, Bernstein Center for Computational Neuroscience Berlin, Einstein Center for Neurosciences Berlin, Charité - Universitätsmedizin Berlin, Biomedical Research Networking Center on Neurodegenerative Diseases, Universitat de Barcelona, Lund University
Language: English
Subfield: Information Systems
Field: Computer Science
Domain: Physical Sciences
Open Access status: gold
Estimated APC paid: $5,780
OpenAlex ID: W4399831473