Year: 2024
Type: article
Abstract: There is a critical need to increase Latino participation in research on Alzheimer's disease and related disorders (ADRD). Applying principles of community-based participatory research, we convened a community advisory board (CAB) to identify barriers and recommend strategies to increase participation of older Latinos in a longitudinal observational research study of ADRD at the Shiley-Marcos Alzheimer's Disease Research Center. Six major barriers were identified and programmatic changes to overcome them were implemented. Changes resulted in a nearly three-fold increase in the number of Latino individuals recruited, with the proportion of all newly recruited participants who were Latino increasing from 12.2% to 57.4%. Newer Latino recruits were more representative of the elderly Latino population in San Diego County than those recruited pre-CAB and remained highly agreeable to blood draw and neuroimaging, though less so to lumbar puncture and autopsy. Results demonstrate the value of CAB involvement in enhancing diversity in ADRD research.
Authors: Kevyn A. Ramirez, Christina Gigliotti, Emily A. Little, Guerry M. Peavy, Carol Evans, Alejandra Morlett Paredes, Lillian Pacheco-Cole, Zvinka Z. Zlatar, Diane M. Jacobs, Tamar H. Gollan, Hector M. González, Jose A. Soria-Lopez, Branko N. Huisa, James B. Brewer, Douglas Galasko, David P. Salmon
Institution: University of California San Diego
Language: English
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W4401643395