Work

Impact of the Graphic Memoir My Degeneration: A Journey Through Parkinson’s on Patients With Parkinson’s Disease: A Mixed Methods Study

Year: 2024

Type: article

Abstract: INTRODUCTION: , by Peter Dunlap-Shohl, on patients' mental health, knowledge, and attitudes about living with Parkinson's disease (PD). The authors further explored which patients found the book to be beneficial and why. METHODS: to read at home, measures were obtained pre- and postintervention, and participants were interviewed within approximately 1 month. RESULTS: 1) validated the experience of living with PD, 2) reinforced practical behaviors that support well-being, 3) provided insight about the illness experience, and 4) was emotionally and physically taxing. There were no statistically significant pre-/postintervention changes in knowledge, self-efficacy, hope, or emotional distress. Book "endorsers" appreciated Dunlap-Shohl's dark humor and resonated with his experience; "detractors" found the book to be blunt and sometimes frightening. DISCUSSION/CONCLUSION: has the potential to benefit patients who appreciate comics, enjoy dark humor, and are not overly pessimistic.

Source: The Permanente Journal

DOI: 10.7812/tpp/23.184