H009 Acceptability of an online support group to improve physical activity for people with Huntington’s disease: preliminary results of a qualitative study
Year: 2024
Type: conference-paper
Abstract: Background Huntington’s disease (HD) is a progressive neurodegenerative condition which impacts physical mobility and psychological wellbeing. Sustaining physical activities for individuals with HD accordingly poses multiple difficulties. Aims This study assessed acceptability of a social media-based activity log intervention conducted by the Chinese HD Association over two years. Methods Participants (n=15) were HD family members who were either HD gene-carriers (premanifest or manifest), or caregivers providing physical, psychological or practical support to a relative with HD. Interviews were conducted individually or in small focus groups of 2-3 participants. The interview guide was structured using the seven-domain Sekhon’s Theoretical Framework of Acceptability, with an additional domain to explore service users’ views regarding further enhancement of support for engagement in physical activity for people with HD. Data analysis was via five-step Framework Analysis. Results In line with the framework used, eight themes were developed. Participants reported that sign-in activities often positively impacted on HD individuals’ engagement in exercise, with key benefits around positive and consistent modelling from activity leads and motivation from seeing other group members succeed. Assistance and encouragement with exercises and activity sign-ins was required from caregivers. Findings also highlighted a need for better education around exercise in HD and a call for psychological support for caregivers and gene-carriers in China. Conclusions The intervention was considered acceptable, supporting people with HD to remain physically active. Improvements to the intervention were identified alongside potential for support in other areas, e.g. psychological wellbeing, to further increase physical activity engagement among service users.
Authors: Shu Xiaoyi, Nan Yang, Xi Cao, Sarah Gunn
Language: English
Subfield: Cellular and Molecular Neuroscience
Field: Neuroscience
Domain: Life Sciences
Open Access status: gold
OpenAlex ID: W4402374790