Work

Involving Experts by Experience in Craniofacial Research

Year: 2024

Type: article

Abstract: Many areas of health research increasingly involve end users of research (typically patients and their families/caregivers) in study design, management, and dissemination. Beyond recruiting patients as research participants, the shift is towards engaging patients, parents and caregivers as active partners on the research team, who are recognised and valued as 'experts-by-experience' (EbyE). Currently, involving EbyE is not routine in global craniofacial research. This paper highlights the value of EbyE involvement, addresses how to incorporate EbyE at all stages of research and discusses key considerations in facilitating positive experiences for EbyE.

Source: The Cleft Palate-Craniofacial Journal

DOI: 10.1177/10556656241283195

Authors: Amanda Bates, Kenny Ardouin, Danielle McWilliams

Institutions: University of Kent, University of Canterbury, Canterbury Christ Church University

Language: English

Topic: Mental Health and Patient Involvement

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $3,950