Year: 2024
Type: article
Abstract: Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.
Source: Journal of Cystic Fibrosis
Institutions: Vanderbilt University Medical Center, Columbia University Irving Medical Center, Mayo Clinic in Florida, University of New Mexico Hospital, University at Buffalo, State University of New York, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cystic Fibrosis Foundation, Inova Fairfax Hospital, Medical University of South Carolina
Language: English
Subfield: Pulmonary and Respiratory Medicine
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $4,070
Funder: Cystic Fibrosis Foundation
OpenAlex ID: W4402814537