Work

Staying agile: Adapting care to meet changing healthcare needs of people with cystic fibrosis

Year: 2024

Type: editorial

Abstract: We have reached a point in our history of cystic fibrosis (CF) that we have long dreamed of – that the majority of those we serve, persons and families living with CF, feel better, suffer fewer complications of their condition, and can expect to live longer, much longer ( Fig. 1 ). They can anticipate a healthier childhood and plan for aspects of adulthood (relationships, families, and meaningful careers) that previously felt out of reach. Historically, people with CF (pwCF) experienced significant reductions in life expectancy primarily due to progressive pulmonary disease [ 1 , 2 ]. Therapies developed to treat symptomatic impacts of CF led to incremental improvements in life expectancy, but with every new treatment came both benefit and burden. Fig. 1

Source: Journal of Cystic Fibrosis

DOI: 10.1016/j.jcf.2024.09.008

Authors: Rebekah F. Brown, A. Whitney Brown, Paula Lomas, Quynh T. Tran, Sarah E. Hempstead, Patrick A. Flume

Institutions: Vanderbilt University Medical Center, Cystic Fibrosis Foundation, Inova Fairfax Hospital, Medical University of South Carolina

Language: English

Topic: Cystic Fibrosis Research Advances

Subfield: Pulmonary and Respiratory Medicine

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $4,070