Work

How to engage people experiencing severe and persistent mental illness in qualitative research: a descriptive and reflexive analysis

Year: 2024

Type: article

Abstract: PURPOSE: People experiencing severe and persistent mental illness (SPMI) constitute a vulnerable population within the healthcare system and society. Similarly in research, there are perceived challenges in qualitative studies with this population due to several factors, including (self-)stigma, assessment of decision-making capacity, reduced communication skills and the (perceived) risk of adverse events, resulting in its scarcity. METHODS: In this contribution, the authors share their practical experiences of conducting qualitative research among this group of people, specifically addressing sensitive topics such as ongoing intensive care within a mental health facility and end-of-life care. Both advantageous and challenging factors that were encountered during different research phases -the preliminary phase, conducting the interviews and the concluding phase are systematically outlined. RESULTS: The findings highlight conscientious conducted in accordance with established standards, albeit with a deliberate embrace of non-conventional approaches while advocating an attitude of critical, ethical reflection. Adequate preparation, fostering creative approaches and adaptable communication to establish rapport and authentic interaction, thorough follow-up and support for all involved are equally crucial to sustain effective qualitative research. CONCLUSION: Engaging people experiencing SPMI in research is as a cornerstone for empowerment-a feasible aspiration. Their inclusion in research endeavours is imperative, because first-hand narratives are key in shaping comprehensive and compassionate care practices for those experiencing severe and persistent mental illness.

Source: International Journal of Qualitative Studies on Health and Well-Being

DOI: 10.1080/17482631.2024.2408817

Authors: Caressa Van Hoe, Loïc Moureau, Monica Verhofstadt

Institutions: KU Leuven, Vrije Universiteit Brussel, Ghent University

Language: English

Topic: Qualitative Research Methods and Ethics

Subfield: Sociology and Political Science

Field: Social Sciences

Domain: Social Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: gold

Estimated APC paid: $1,790