Blueprint Persona and Information and Communication Technology Interventions: Addressing Unmet Needs in Burning Mouth Syndrome Care
Year: 2024
Type: article
Abstract: OBJECTIVES: This study aimed to create a Blueprint Persona for Burning Mouth Syndrome (BMS) patients, focusing on Unmet needs that digital solutions can address. METHODS: An interdisciplinary focus group formulated the BMS Blueprint Persona by discussing clinical data and survey results regarding education, informatics skills, and perceived unmet needs, collected from 500 BMS patients between 2022 and 2023. RESULTS: The BMS Blueprint Persona, named Anna, represents a typical BMS patient profile: a young-old woman with limited computer skills who experiences anxiety, depression, and insomnia, has memory issues leading to medication adherence challenges, is obese due to overeating, and spends much time watching TV at home. Anna's primary concern is receiving inadequate treatment and not achieving disease remission. She also feels misunderstood and lacks family support. This persona reveals several areas where Information and Communication Technology (ICT) interventions, like telemedicine, anxiety and insomnia treatment, drug adherence improvement, and nutritional and lifestyle guidance, could be beneficial. The focus group also outlined the essential features for a prospective mHealth app to meet BMS patients' diverse needs. CONCLUSION: The development of the BMS Blueprint Persona successfully identified patient characteristics and unmet needs, offering valuable insights for creating personalized diagnostic-therapeutic pathways and digital health solutions for BMS.
Authors: FEDERICA CANFORA, MAURO CATALDI, MICHELE DAVIDE MIGNOGNA, GIULIA OTTAVIANI, STEFANIA LEUCI, NOEMI COPPOLA, GIUSEPPE PECORARO, VINCENZO DE LUCA, ELENA SALVATORE, GIOVANNI DELL'AVERSANA ORABONA, VINCENZO ABBATE, GUIDO IACCARINO, MICHELE VIRGOLESI, SARA APRANO, CLAUDIA VETRANI, DANIELA LEMMO, MASSIMO ARIA, MADDALENA ILLARIO, DANIELA ADAMO
Language: English
Subfield: Human-Computer Interaction
Field: Computer Science
Domain: Physical Sciences
Open Access status: hybrid
Estimated APC paid: $3,450
Funder: Ministero della Salute
Award: G1176956748
OpenAlex ID: W4403634525
