Work

Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study

Year: 2024

Type: article

Abstract: This paper explores the use of participatory video (PV) in a case study conducted in Arcoverde, Brazil, to address the call for greater participation of individuals with disabilities in health and social care planning and research. PV is grounded in similar concepts to the Disability Rights Movement's principle of "Nothing About Us, Without Us" and serves as a potential collaborative tool for individuals with disabilities to shape their narratives and contribute to research. The study was part of a multi-methods research project on healthcare access, with the PV research focusing on primary healthcare in Arcoverde. The researcher emphasizes the action-oriented and community-based approach, to foster an inclusive environment through workshops, story circles, and video-making. Ethical considerations prioritize informed consent and identity protection. The results underscore the potential empowering impact of PV, fostering community awareness and practical awareness among participants. The discussion emphasizes the ethical considerations, challenges, and the need for reflexivity in participatory video research.

Source: Qualitative Health Research

DOI: 10.1177/10497323241298922

Authors: Veronika Reichenberger, Loveday Penn-Kekana, Shaffa Hameed, Tom Shakespeare, Hannah Kuper

Institution: London School of Hygiene & Tropical Medicine

Language: English

Topic: Participatory Visual Research Methods

Subfield: Sociology and Political Science

Field: Social Sciences

Domain: Social Sciences

SDGs: Reduced inequalities, Good health and well-being

Open Access status: hybrid

Estimated APC paid: $4,200