Work

Caring for children and young people with inherited cardiac conditions: the evolving role of specialist nurses

Year: 2024

Type: article

Abstract: Inherited cardiac conditions (ICCs) encompass a range of rare genetic heart diseases and require the expert care of a skilled multidisciplinary team. Increased awareness of these conditions and advances in genetic testing have led to a rise in demand for specialist ICC services. The Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital in London, England, is a tertiary centre for the diagnosis and management of ICCs in children and young people. Specialist nursing roles have developed at the centre in recent years in parallel with the growth of ICC nursing. There are also increasing opportunities for advanced and autonomous nursing practice to support the provision of high-quality care for children and young people affected by ICCs and their families.

Source: Nursing Children and Young People

DOI: 10.7748/ncyp.2024.e1532

Authors: Jennifer Tollit, Stephanie Oates, Alessia Odori, Sorcha Smyth, Juan Pablo Kaski, Ella Field

Institutions: University College London, Great Ormond Street Hospital for Children NHS Foundation Trust

Language: English

Topic: Nursing Roles and Practices

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funders: British Heart Foundation, Medical Research Council