Year: 2024
Type: article
Abstract: Technological advances in the genetic area arouse interest, as they make it possible to diagnose and eliminate genetic diseases at an increasingly earlier stage, even at an embryonic stage. However, the use of data obtained from testing may lead to discriminatory consequences. The purpose of this work is to analyze the degree of vulnerability of genetic data holders in the information society, in a context in which personal data are at the center of struggles for power. The increase in the economic value of information, combined with the ease of acquiring, maintaining and storing data, such as genetic data, makes a global debate on data protection, the potential for economic exploitation and the protection of its holders essential
Authors: Salete Oro Boff, Ana Julia Oliveira Alcantara
Institution: Universidade do Vale do Rio dos Sinos
Language: English
Subfield: Law
Field: Social Sciences
Domain: Social Sciences
SDG: Reduced inequalities
Open Access status: diamond
OpenAlex ID: W4405894486