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Supporting Autonomy for Patients with Intellectual Disability: Principles for Care Providers

Year: 2024

Type: article

Abstract: Individuals experiencing intellectual disabilities (ID) often experience restricted autonomy. The prima facie core ethical principle of autonomy provides the fundamental basis for assuring self-determination for all persons, regardless of disability. This is affirmed by article 12 of the United Nations Convention on the Rights of Persons with Disabilities. However, ethical challenges arise from tension between prima facie principles, in this circumstance, between the mandate for autonomy and goal of nonmaleficence. This commentary reviews these concepts and recent research exploring intrinsic and extrinsic factors that enhance autonomy in persons with ID. Practical recommendations are provided to assist care providers in being intentional in anticipating challenges and in guiding their patients with ID and their families toward optimal degrees of autonomy.

Source: Journal of Pediatric Neurology and Neuroscience

DOI: 10.36959/595/451

Authors: Keeney Kenzie I., Filloux Francis M.

Institution: University of Utah

Language: English

Topic: Ethics and Legal Issues in Pediatric Healthcare

Subfield: Pediatrics, Perinatology and Child Health

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

OpenAlex ID: W4407943110

FWCI: 0.615

Cites:

Cited by: 1

Related to: 10