Work

Public concerns about direct-to-consumer DNA test kits: the evidence from survey and social media data

Year: 2025

Type: article

Abstract: Despite the popularity of direct-to-consumer (DTC) genetic tests, vocal critics have voiced concerns about test utility, data security, and consumers’ ability to interpret results. This study explores what issues consumers are concerned with and how prevalent these concerns are. Through an analysis of open-ended survey responses and publicly available social media comments, we examined the factors that prevent individuals from purchasing a DTC genetic test, and the broader social media discourse surrounding these issues. Findings highlight the differences between consumer decision-making and public discourse, with survey results emphasizing interest and cost as major factors and social media comments focusing on issues of privacy and institutional distrust.

Source: New Genetics and Society

DOI: 10.1080/14636778.2025.2456259

Authors: Nicole M. Lee, Nolan Speicher, Rachel Adair, Carrie Clower, Andrew Binder

Institutions: Arizona State University, North Carolina State University

Language: English

Topic: Biomedical Ethics and Regulation

Subfield: Physiology

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $1,590