Work

Understanding the Impact of a Cleft Camp in Aotearoa New Zealand on Sociability, Self-Esteem, and Confidence

Year: 2025

Type: article

Abstract: Objective Although camps have been offered previously for cleft and craniofacial conditions, few have been evaluated empirically. This study sought to determine whether a community-led camp peer support event led to improved sociability and self-esteem among camp attendees. Design A mixed methods study was employed. Standardized measures were administered prior to camp, immediately after camp, and 2 weeks after returning home from camp. Qualitative data were collected using focus groups on the final day of camp. Setting A nationwide 3-day camp in Auckland, New Zealand, organized in partnership between the University of Canterbury and Cleft New Zealand. Participants Twenty-seven people with cleft aged 10 to 18 attended the camp, of whom, 22 participated in the research study. Main Outcome Measures The Rosenburg Self-Esteem Scale, Harter Sociability Scale, and Body Image Life Disengagement Questionnaire were analyzed using descriptive statistics and t tests to compare data across timepoints and to normative data. Focus group data were analyzed using conventional content analysis. Results Many camp participants were already well-adjusted prior to camp and therefore did not demonstrate improvements in quantitative measures over time. Contrastingly, those who scored below the norm at baseline demonstrated significant gains in self-esteem and sociability. Focus group data demonstrated that people felt less isolated, more confident, and more knowledgeable about cleft after attending camp. Conclusions Residential camps for youth with cleft offer a valuable peer support experience and can result in measurable benefits to young people's sociability and self-esteem, alongside qualitatively reported gains. Offering cleft and craniofacial camps as part of a comprehensive youth program is indicated.

Source: The Cleft Palate-Craniofacial Journal

DOI: 10.1177/10556656251329297

Authors: Kenny Ardouin, Nicola Stock, Tika Ormond, Phoebe Macrae

Institutions: University of Canterbury, University of the West of England

Language: English

Topic: Cleft Lip and Palate Research

Subfield: Genetics

Field: Biochemistry, Genetics and Molecular Biology

Domain: Life Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $4,150