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Patient Engagement and Co-creation of Rare Disease Research: Lessons from the Global Moyamoya Patient Registry (P12-14.013)

Year: 2025

Type: article

Study design: Observational Study

Source: Neurology

DOI: 10.1212/wnl.0000000000212601

Authors: Dean Houle, Sophia Kocher, Roxanne Houle, Catherine Stratton

Institutions: Duke University, University of Toronto

Language: English

Topic: Moyamoya disease diagnosis and treatment

Subfield: Rheumatology

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: closed

OpenAlex ID: W4409234804

FWCI:

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Related to: 10