Work

Global hospital-based cancer registry: SJCARES network and current site activity in Continental Asia

Year: 2025

Type: article

Abstract: Introduction:The SJCARES Registry is a St. Jude Global led hospitalbased cancer registry network designed to promote registration of pediatric cancer patients internationally.We report data from active network registries in continental Asia. Methodology:The SJCARES Registry collects data using standardized case report forms (CRFs).Participating hospitals have complete ownership of their data governed by executed data use agreements (DUAs).Patients are enrolled upon suspicion of cancer in the hospital and followed for up to 5 years.Data is entered into a cloud-based platform where central support for data cleaning is provided, and quarterly reports are generated.Results: In continental Asia, 44 sites in 20 countries have signed DUAs to join the network and are currently at different stages of onboarding.11 sites have started registering patients.The cumulative number of patients registered as of December 5, 2024 was 11,896 of which 5,008 (42%) were registered during the previous 12 months.Demographically, 7,183 (60%) were males and the median age of diagnosis was 6 years (IQR=8).,585/10,371 (92%) of cases were microscopically verified.

Source: OncoDaily Medical Journal

DOI: 10.69690/odmj-018-0425-1887