Year: 2025
Type: article
Abstract: : This commentary discusses twelve pieces detailing patient and parent experiences using the electronic health record and portal system. Authored by a combination of adolescents and parents, the stories include views of individuals navigating both straightforward and very complex health journeys. Several common themes are identified and discussed in the context of portal development and the 21st Century Cures Act Final Rule. Authors routinely commented on the challenges of limited portal access once an adolescent turns twelve years of age. Adolescents and parents discussed the importance of continued portal access for care management and coordination, as well as medical decision-making. The commentary highlights the challenges and opportunities in providing equitable portal access for adolescents and their families.
Source: Narrative Inquiry in Bioethics
Author: Jennifer L. Carlson
Institutions: Stanford Medicine, Stanford University
Language: English
Subfield: Health Information Management
Field: Health Professions
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W4409523347