Work

Pediatric Access to Electronic Health Information: Stories from Adolescents and Parents

Year: 2025

Type: article

Abstract: : This symposium includes twelve personal narratives from parents and adolescents reflecting on their experiences access electronic health information (EHI) through online patient portals. Four commentaries on these narratives are also included, authored by experts and scholars in communication, adolescent medicine, critical care, informatics, ethics, and law. The goal of this symposium is to call attention to the varying experiences, needs, hopes, and frustrations of parents and adolescents as they navigate adolescent EHI and healthcare.

Source: Narrative Inquiry in Bioethics

DOI: 10.1353/nib.2025.a957188

Author: Bryan A. Sisk

Institution: Washington University in St. Louis

Language: English

Topic: Health Literacy and Information Accessibility

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: bronze

Funders: Conquer Cancer Foundation, American Society of Clinical Oncology