Work

Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning

Year: 2025

Type: article

Abstract: Purpose To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients. Method Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses. Results Four major themes were identified: (1) Improvements Needed for Caregiver Education , (2) Caregiver Support Needs During and After Caregiving , (3) Obstacles Faced During Caregiving , and (4) Need for Restored Identity Following Care Recipient Death . Former family caregivers also expressed a desire to support current caregivers. Conclusion Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [ Journal of Gerontological Nursing, 51 (6), 30–37.]

Source: Journal of Gerontological Nursing

DOI: 10.3928/00989134-20250417-01