Work

Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability

Year: 2025

Type: article

Abstract: The inclusion of adults with intellectual disability (ID) in precision medicine research has scientific, public health, and social justice justifications. Yet there is an indication that this population is excluded from general (i.e., nondisability specific) health research, including precision medicine research. Adults with ID are thus unlikely to reap the benefits emerging from such scientific endeavors-today and in the future. In this commentary, we explore key issues in research ethics, including cohort diversity, the principle of justice, and consent, and discuss their ramifications for adults with ID and precision medicine researchers. We call for endorsing team science collaboration and community engagement to promote health equity for adults with ID and disability justice in precision medicine research.

Source: American Journal on Intellectual and Developmental Disabilities

DOI: 10.1352/1944-7558-130.3.171

Authors: Maya Sabatello, Katherine E. McDonald

Institutions: Columbia University Irving Medical Center, Syracuse University

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: green

Funders: National Institutes of Health, National Human Genome Research Institute, Eunice Kennedy Shriver National Institute of Child Health and Human Development