Year: 2025
Type: article
Abstract: The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal experiences with receiving a Down syndrome diagnosis. A total of 40 mothers participated, 42.5% received a prenatal diagnosis, 17.5% received the diagnosis during labor and delivery, and 40% received the information at the early postnatal period. Through reflexive thematic analysis, four key themes emerged: (1) About Who and How the News Was Delivered (2), About When the News Was Delivered (3), On Where the News Should Be Delivered (4), parents' positive experiences emerging from this, predominantly, negative episode. Our findings emphasize the need for improved training for healthcare professionals in delivering sensitive diagnoses, with an emphasis on empathy, accurate information, and support resources for families.
Source: BMC Pregnancy and Childbirth
Authors: Marcela Tenorio D, Johanna Sagner-Tapia, Renata Garibaldi, Vaso Totsika
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $3,290
Awards: G2276619865, DINAMICAS EDUCATIVAS FAMILIARES LA EXPERIENCIA EDUCATIVA COTIDIANA EN FAMILIAS CON NINOS/AS CON DISCAPACIDAD INTELECTUAL, G3375588610, G5933181559, PAVING THE WAY FOR AUTONOMY AN INTERDISCIPLINARY APPROACH TO THE RELATIONSHIP BETWEEN EARLY INTERACTIONS AND ADAPTIVE BEHAVIOUR IN INFANTS WITH DOWN SYNDROME., MILLENNIUM NUCLEUS STUDIES ON DISABILITY AND CITIZENSHIP
OpenAlex ID: W4410132388