PanCareSurPass Project in Germany: Local Developments for the Multi-Country Implementation Study of SurPass v2.0 at a Single Center in Germany
Year: 2025
Type: book-chapter
Abstract: The implementation of standardized long-term follow-up care for childhood cancer survivors is crucial for ensuring their well-being. In this paper, we focus on the integration of the Survivorship Passport into the German healthcare system, particularly through collaboration between the University Hospital Schleswig-Holstein and the German Childhood Cancer Registry. The SurPass aims to provide comprehensive treatment summaries and personalized care plans based on international guidelines. Using the PanCareSurPass project framework, we developed a method for mapping data from a clinical trial management system to the projects profile, facilitating the creation of necessary FHIR resources. Through an Extract, Transform, Load process and validation, patient data is transferred to the Survivorship Passportplatform. Our results demonstrate successful data flow from demographic, diagnostic, and treatment sources to the platform.
DOI: 10.3233/shti250506
Authors: Anke Neumann, Anna-Liesa Filbert, Diana Walz, Lisa Knörr, Andrea Csipak, Timm Lilienthal, Franziska Richter, Judith Gebauer, Thorsten Langer, Josef Ingenerf, Jan Schladetzky, Davide Saraceno, Giorgio Cangioli, Riccardo Haupt, Desiree Grabow, Ann-Kristin Kock-Schoppenhauer
Language: English
Subfield: Health Information Management
Field: Health Professions
Domain: Health Sciences
Open Access status: hybrid
Funder: European Commission
OpenAlex ID: W4410447489