Work

The Evolution of Informational Needs of People With Complex Regional Pain Syndrome

Year: 2025

Type: article

Abstract: AIM: To identify the information needs of people with a new or existing diagnosis of complex regional pain syndrome. DESIGN: A qualitative descriptive approach was taken. METHODS: Nineteen interviews were conducted with people diagnosed with complex regional pain syndrome. The interviews were focused on issues related to seeking information. Data analysis followed the reflexive thematic analysis framework as identified by Braun and Clarke. RESULTS: Analysis of the interview transcripts revealed four overarching themes-information needs and information-seeking actions at the time of diagnosis, information needs and information-seeking actions in the present, problems seeking or receiving information, and recommendations from lived experience. CONCLUSION: The information needs of those diagnosed with complex regional pain syndrome evolve from understanding the condition to seeking management strategies specific to personal circumstances as individuals start to understand and manage the condition. People seek support from healthcare professionals and others who have lived with the condition. Access to current, credible information and acknowledgment of their pain reality by healthcare professionals are important considerations for individuals with complex regional pain syndrome.

Source: Pain Management Nursing

DOI: 10.1016/j.pmn.2025.04.010

Authors: Colleen Johnston-Devin, Sancia West, Florin Oprescu, Katrina Lane-Krebs, Michelle Cleary

Institutions: Central Queensland University, University of the Sunshine Coast

Language: English

Topic: Health Literacy and Information Accessibility

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $3,350