Year: 2025
Type: other
Abstract: Patient-reported outcome measures (PROMs) uniquely capture the patient's perception of healthcare quality and outcomes. When high-quality PROM data exist across healthcare entities, patient-reported outcome performance measures (PRO-PMs) can be defined and implemented. When PRO-PMs are incorporated into value-based initiatives, the desired result will reward excellence and incentivize improvement, resulting in better healthcare driven by patients’ treatment priorities and assessment of their priority outcomes. Significant resources have been invested to facilitate the widespread adoption of PRO-PMs including construction of a roadmap to PRO-PM measure development, development of the National Institute of Health (NIH)–sponsored Patient-Reported Outcomes Measurement Information System (PROMIS), and technical guidance to support interoperability and data standardization. Efforts to define approaches to analysis and interpretation are emerging. Increasing adoption of PRO-PMs is observed in regulatory programs supported by registries and healthcare system quality improvement programs. However, when potential use is contrasted with the current landscape, despite a few success stories and regulatory commitments, the voice of the patient in quality measurement remains muted. For future success, the path forward must include a strategy to apply best practices that embrace advancing technology and overcome multi-level obstacles to PRO-PM definition and adoption.
Authors: Margaret Morris, Patricia D. Franklin, Nan E. Rothrock, David Cella
Institution: Northwestern University
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: gold
Funder: National Cancer Institute
Awards: G1382277591, G4372147948
OpenAlex ID: W4413124570