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Learning disability liaison nurses: the provision of compassionate, person-centred care for people with learning disabilities accessing acute hospital care

Year: 2020
Type: article
Abstract: feature Learning disability liaison nurses: the provision of compassionate, person-centred care for people with learning disabilities accessing acute hospital care by Michael Brown (FRCN 2015) T he publication that underpins this article (Brown et al 2016) arose from research on equality of access to acute hospitals for people with learning disabilities.It presents findings from a large study involving four Scottish NHS boards and 11 acute hospitals.The study had 100 participants, comprising families, carers and health professionals with direct experience of the contributions made by learning disability liaison nurses.We identified the outcomes achieved by the nurses and their contribution to the provision of person-centred and compassionate care in the acute hospital setting.The work to improve acute hospital care for people with learning disabilities has continued for around 20 years, during which time there have been many developments.The work started in 1997 and was a The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care AbstractPeople with learning disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality.The effective provision of compassionate, person-centred care is essential to prevent complications and avoidable deaths.The aim and objectives of the study were to investigate the experiences of patients with learning disabilities, their family, carers and health professionals regarding the role of learning disability liaison nurses and the delivery of compassionate, person-centred care and from this, to propose a model of personcentred care embedded in these experiences.A qualitative design was adopted with interpretative phenomenological analysis for data analysis.Semi-structured interviews and focus groups were conducted, Data were analysed with a focus on compassionate, person-centred care elements and components.Themes were modelled to develop a clinically meaningful model for practice.collaboration with Dr Juliet MacArthur, who is now chief nurse for research and development with NHS Lothian.At the time, I was a practice development nurse in Lothian Primary Care NHS Trust, and Juliet was in a similar role in the then Western General Hospitals NHS Trust.We established the first learning disability liaison nurse role in 1999 in the Western General Hospital Acute NHS Trust, Edinburgh.The role was an innovative response to the often complex health needs and the frequency of access to acute hospitals of people with learning disabilities.The focus of the role was to provide people with learning disabilities and their families access to additional support and education, before and during hospital attendance and admission and at discharge.
Language: English
Field: Medicine
Open Access status: hybrid
OpenAlex ID: W4414136570
FWCI: 0.188
Cites: 17
Cited by: 2
Related to: 10