Work

Assessment of a novel patient reported outcome measure for visual snow syndrome: the Colorado visual snow survey 2.0

Year: 2025

Type: article

Abstract: Introduction: Visual snow syndrome (VSS) is a condition in which people experience a continuous overlay of small dots atop their entire visual field. As a newly recognized condition, there is a gap in patient reported outcome measures (PROMs) that target VSS symptom impact. Methods: We sought to assess the Colorado Visual Snow Survey 2.0 (CVSS) as a possible PROM for VSS using a convenience sample of undergraduate students and people with VSS recruited through the Visual Snow Initiative (N = 144). Results: We found the CVSS (1) strongly differentiated people with VSS from healthy controls, (2) demonstrated high internal consistency, and (3) aside from visual static, the degree of night vision impairment, blue field entoptic phenomenon, and afterimages, and tinnitus (in that order) best predicted group membership. We also find evidence to suggest people with VSS may be more sensitive to entoptic phenomenon and depersonalization/derealization than control participants. Conclusion: Overall, CVSS is a promising PROM that warrants further validation.

Source: Frontiers in Neurology

DOI: 10.3389/fneur.2025.1664310

Authors: Samuel M. Maione, Victoria S. Pelak, Peter Gerhardstein

Institutions: Binghamton University, Johns Hopkins University, University of Colorado Anschutz, University of Colorado Denver

Language: English

Topic: Migraine and Headache Studies

Subfield: Psychiatry and Mental health

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $3,801