Work

Caregiver Impact and Understanding of Retinopathy of Prematurity Screening

Year: 2025

Type: article

Abstract: This research brief collected quantitative data on the impact of retinopathy of prematurity (ROP) screening, including follow-up eye care. In total, 37 survey responses from caregivers of infants who underwent ROP screening at UCLA Medical Centers between January 1, 2011 and February first, 2021 were included, and 17 (46%) of the infants had ROP. In total, 36 (98%) caregivers remembered their child undergoing ROP screening and accurately recalled why their child received the screening along with the outcome. More caregivers of children with ROP reported significant family impact from caring for their preterm child, including having to give things up [10 (59%) versus 3 (15%); p = .0245] and seeing family and friends less [8 (47%) versus 1 (5%); p = .0275]. Children with ROP were more likely to be followed by more than one eye specialist [10 (59%) versus 2 (10%); p = .0011] and diagnosed with additional eye conditions [4 (24%) versus 0; p = .0091]. Caregivers of children with ROP experienced increased long-term family impact compared to caregivers of children who were screened but did not have ROP.

Source: Journal of Patient Experience

DOI: 10.1177/23743735251383261

Authors: Weilin Song, Maggie Hui, Monica Khitri, Alison Chu, Irena Tsui

Institutions: University of California, Los Angeles, Doheny Eye Institute

Language: English

Topic: Retinopathy of Prematurity Studies

Subfield: Radiology, Nuclear Medicine and Imaging

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $1,380