Parent and Physician Global Assessment Discordance in Juvenile Arthritis: The Role of Pain Coping Strategies
Year: 2025
Type: article
Study design: Observational Study
Abstract: Objective: To evaluate the factors underlying the discordance in physicians', patients', and caregivers' perceptions of disease state in patients with juvenile idiopathic arthritis and their caregivers in a prospective observational study. Study design: We invited all children in 8 centers in Finland from November 2021 to March 2024 presenting with newly confirmed or suspected juvenile idiopathic arthritis and the accompanying parents to participate. Children older than 8.0 years and all the parents completed the patient and parent proxy pain and global assessment of wellbeing at 0 and 3 months and the pain coping scale at 3 months after diagnosis. The discordance between patient or parent global assessment and physician global assessment of disease activity was determined by subtracting the physician global from the patient or parent global assessment. The factors explaining discordance between the global assessments, were evaluated by a multivariable linear model. Results: < .005), the greater the discordance between parent and physician global assessment. Conclusion: The discordance between parent's and physician's global assessment is greater among parents who use catastrophizing as a pain coping strategy.
Authors: Maria Backström, Anna Halttu, Maarit Tarkiainen, Ella Lehtinen, Sirja Sard, Paula Keskitalo, Kati Markula-Patjas, Katariina Rebane, Kristiina Aalto, Terhi Remes-Pakarinen, Johanna Kärki, Maiju Hietanen, Heini Pohjankoski, Katja Korkatti, Emmi Kosonen, Eliisa Löyttyniemi, Merja Malin, Liisa Kröger, Paula Vähäsalo
Institutions: The Wellbeing Services County of Ostrobothnia, University of Oulu, Oulu University Hospital, University of Helsinki, Helsinki University Hospital, Helsinki Children's Hospital, Tampere University, Pirkanmaa Hospital District, Tampere University Hospital, University of Tampere, Kuopio University Hospital, Finnish Institute for Health and Welfare, Kanta-Hämeen Keskussairaala, Päijät-Hämeen Keskussairaala, Keski-Pohjanmaan keskussairaala, University of Turku, City of Helsinki
Language: English
Subfield: Hematology
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $2,050
OpenAlex ID: W4415018919
