Year: 2025
Type: article
Abstract: Transgender and gender diverse (TGD) adults may face multilevel barriers within the United States (U.S.) healthcare system, and resources to support their agency in healthcare settings are limited. Using a human-centred design approach, researchers conducted a qualitative descriptive study to co-develop an advance care planning (ACP) resource with TGD adults living in the U.S. Twenty-seven participants joined the study across three phases. In Phase 1, participants generated ideas for ACP resources. In Phase 2, participants discussed ideas for designing one of these resources. Three prototypes of the resource were developed in Phases 2 and 3. Data collected through interviews and group sessions across all three phases were analysed thematically, and four themes were generated to guide iterative prototyping of the resource: (1) Motivation: Promoting agency through proactive healthcare decision-making; (2) Composition: Integrating simple features, guided choices, and inclusive media; (3) Dissemination: Connecting to the community through snowball networking; and (4) Expansion: Fostering support and sustainability through grassroots efforts. This study addresses a gap in health resources for TGD adults and supports future research to engage TGD adults in finding creative solutions to challenges they face in the healthcare system.
Source: Design for Health
Authors: Lauren Catlett, Ames Simmons, Virginia LeBaron, Ishan C. Williams, Gracie M. Barker, Charley Burton, Tiffany King, Kimberly D. Acquaviva
Institutions: University of Virginia, Duke University
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
OpenAlex ID: W4415065186