A Short Version of Carers' Quality of Life Questionnaire for Parkinsonism: Data from Progressive Supranuclear Palsy Network
Year: 2025
Type: article
Abstract: BACKGROUND AND OBJECTIVES: Caregivers of progressive supranuclear palsy (PSP) patients frequently show significant distress. The Parkinsonism Carers quality of life (QoL) (PQoL Carer) is a valid tool evaluating the effect of PSP on caregivers' QoL. Main aim of the present study was to develop a short version of the PQoL Carer, named PSP-ShoQoL Carer. METHODS: PQoL Carer was administered within the PSP-NET. Participants underwent clinical, motor, cognitive, and behavioral evaluations. RESULTS: Data from 344 participants were included. The final PSP-ShoQoL Carer included eight items. The internal consistency was high (Cronbach's α = 0.867) and PSP-ShoQoL Carer showed also good acceptability, reliability, and validity. The PSP-ShoQoL Carer showed a significant correlation with caregivers' standard measures of QoL and with patients' motor, cognitive, and behavioral characteristics, such as neuropsychiatric symptoms. Finally, PSP-ShoQoL Carer showed an appropriate sensitivity to change over 6-month follow up. CONCLUSIONS: PSP-ShoQoL Carer is a reliable and valid time-saving tool for the assessment of caregivers' QoL in PSP.
DOI: 10.1002/mdc3.70389
Authors: Arianna Cappiello, Giovanna Calandra‐Buonaura, Roberto Ceravolo, Saverio Coralli, Sofia Cuoco, Eleonora del Prete, Francesca di Biasio, Daniela Frosini, Vittorio Gualtieri, Davide Mascioli, Luisa Sambati, Tommaso Schirinzi, Alessandro Stefani, Elisa Umbertini, Marco Aiello, Matteo Costanzo, Rosa de Micco, Giovanni Fabbrini, Gaetano Failla, Chiara Longo, Maria Chiara Malaguti, Nicola Modugno, Enrica Olivola, Noemi Maria Carola Russo, Alessandro Tessitore, Andrea Ciammola, Carlo Colosimo, Anna de Rosa, Laura de Togni, Alessio di Fonzo, Vincenzo Moschella, Andrea Pilotto, Francesca Spagnolo, Roberta Zangaglia, Paolo Barone, Marina Picillo, the PSP‐NET study group
Institutions: University of Salerno, University of Bologna, University of Pisa, University of Genoa, Ospedale Policlinico San Martino, University of Rome Tor Vergata, Istituto Superiore di Sanità, Sapienza University of Rome, University of Campania "Luigi Vanvitelli", Istituto Neurologico Mediterraneo, Ospedale Cannizzaro, Ospedale Santa Chiara, IRCCS Istituto Auxologico Italiano, Azienda Ospedaliera S.Maria, Federico II University Hospital, University of Naples Federico II, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, ASL Roma, Ospedale San Filippo Neri, Azienda Socio Sanitaria Territoriale degli Spedali Civili di Brescia, University of Brescia, Ospedale A. Perrino, Fondazione Istituto Neurologico Nazionale Casimiro Mondino
Language: English
Subfield: Neurology
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $3,400
OpenAlex ID: W4415267635