Work

“Nobody listened to us for years”: Parents' experiences of provider communication in the diagnostic odyssey

Year: 2025

Type: article

Source: Molecular Genetics and Metabolism

DOI: 10.1016/j.ymgme.2025.109283

Authors: Michelle M. Nguyen, Sevil Mahfoozi, Devon Bonner, Daphne O. Martschenko, Alisha Giri, Charis Tang, Jonathan A. Bernstein, Matthew T. Wheeler, Meghan C. Halley

Institutions: Stanford University, Stanford Medicine, Stanford Cardiovascular Institute

Language: English

Topic: Genomics and Rare Diseases

Subfield: Genetics

Field: Biochemistry, Genetics and Molecular Biology

Domain: Life Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: green

Funders: National Institutes of Health, National Human Genome Research Institute, National Institute of Neurological Disorders and Stroke

Awards: G1479746056, G3109678093, G6096394517

OpenAlex ID: W4415827902

FWCI: 2.662

Cites: 51

Cited by: 5

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