Work

Health-related quality of life among families of children with severe bronchopulmonary dysplasia

Year: 2025

Type: article

Abstract: OBJECTIVES: We aimed to profile the family impact, specifically parental health-related quality of life (HRQoL) and family functioning, of children discharged from a quaternary referral program with the most severe forms of bronchopulmonary dysplasia (BPD). STUDY DESIGN: We collected cross-sectional data through telephone interviews with 282 families of children aged 18 months to 11 years who had been discharged from a BPD referral program. RESULTS: Parental HRQoL and family functioning were not associated with the child's age, despite improvements in the children's health and respiratory morbidity with age. Many medical issues negatively impacted parental HRQOL and family functioning. The health outcome most strongly associated with decreased parental HRQoL and family functioning was an autism diagnosis, followed by use of feeding tube. CONCLUSIONS: Among families of children discharged from a quaternary BPD program, family impact was not associated with child age and was impacted by a wide range of health outcomes in their children.

Source: Journal of Perinatology

DOI: 10.1038/s41372-025-02468-x

Authors: Kathryn Farrell, Sara B. DeMauro, Kathleen Gibbs, Heidi Morris, Kathleen Nilan, Katharine P. Callahan

Institutions: University of Pennsylvania, Children's Hospital of Philadelphia

Language: English

Topic: Neonatal Respiratory Health Research

Subfield: Pulmonary and Respiratory Medicine

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $4,790