Work

Digitising health history: The creation, function and implementation of the Norwegian Health Archives Registry

Year: 2025

Type: article

Abstract: CONTEXT: The Norwegian Health Archives Registry (NHAR) is a national initiative dedicated to digitising, centralising, and providing access to historical full-text patient health records (PHRs) for research purposes. Established in 2019, NHAR includes PHRs from the deceased population in Norway's specialist healthcare services, offering a unique long-term data source for future research. NHAR has now digitised 1.7 million paper-based PHRs, covering medical history dating back to 1875. The registry is now expanding to include digital-born PHRs. AIM: This article describes NHAR's innovation potential as a health registry, its data management processes, and the integration of artificial intelligence (AI) tools to facilitate data management and research in compliance with strict health data regulations. PRACTICE INNOVATION: NHAR's data value chain includes structured metadata acquisition, large-scale digitisation and secure data delivery for research. The workflow includes a custom optical character recognition (OCR) tool tailored to Norwegian medical terminology, concept-based search tools for unstructured clinical full text and robust strategies for long-term data management. A novel AI-based de-identification system automatically detects and masks personal identifiers in digitised PHRs. LESSONS LEARNED: Despite these innovations, challenges persist in processing handwritten and historical PHRs due to OCR limitations and language-specific complexities. Key challenges include improving data quality, enhancing OCR accuracy and refining AI tools for information retrieval, data extraction and de-identification. CONCLUSION: NHAR offers significant potential for interdisciplinary research across various medical fields.Implications for health information management practice:NHAR establishes a foundation for secure access to historical health data and introduces advanced data management strategies to facilitate future research.

Source: Health Information Management Journal

DOI: 10.1177/18333583251389095

Authors: Gina Helstad, Pierre Lison, Elin Tuveng, Kari Nytrøen

Institutions: Norwegian Computing Center, Norwegian University of Science and Technology

Language: English

Topic: Electronic Health Records Systems

Subfield: Health Information Management

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $3,650