QOL-10. Utilization of patient navigation services in care delivery for patients with glioblastoma across medical center sizes: A cross-sectional survey of caregivers
Year: 2025
Type: conference-abstract
Abstract: BACKGROUND Glioblastoma (GBM) is an aggressive and incurable brain cancer marked by rapid progression and a wide range of neurocognitive, behavioral, and physical symptoms. Patients with GBM rely on primary caregivers from diagnosis to help process information regarding treatment options and medical decision-making. Patients often seek second opinions and explore clinical trial options. Caregivers frequently express a preference for a single, consistent point of contact to coordinate medical information, treatment planning, and decision-making throughout the illness trajectory. METHODS In February 2024, a 38-item survey was distributed to primary caregivers of patients with GBM, recruited from Facebook support groups (IRB exempt, #H24-0393). The survey assessed treatment facility types, medical team composition, and access to supportive services including patient or nurse navigators. RESULTS Among respondents (N=75), initial GBM diagnoses occurred at major medical centers (n=32), community hospitals (n=21), university medical centers (n=15), brain tumor centers (n=4), and through incidental findings (n=3). Twenty-six percent of respondents reported seeking second opinions. Most patients received standard-of-care treatment (maximal surgical resection followed by concurrent chemoradiation) across various facility types. Patient navigator involvement varied: 17% at major medical centers and 50% at university medical centers. Although most patients received treatment at major centers (n=27), only 18% of caregivers reported that a patient navigator was part of the care team. Qualitative analysis of open responses reinforced the need for better coordination of care and better communication with care team members. CONCLUSION Patient navigation services are underutilized in the care of patients with GBM, representing a missed opportunity to support caregivers and improve care coordination. Greater integration of navigation services may enhance access to treatment options, including clinical trials, and reduce caregiver burden throughout the illness trajectory.
Source: Neuro-Oncology
Authors: Reagan Crowl, Taylor Wachter, Anna Vreeling, Lauren Robbins, Alaina Doss, Hayley Estrem, Barbara Lutz, Laurie Minns
Institution: University of North Carolina Wilmington
Language: English
Topic: Cancer survivorship and care
Subfield: Oncology
Field: Medicine
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W4416139788
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