Work

Quality of Life in Port-Wine Stains of Children and Their Parents

Year: 2025

Type: article

Abstract: Port-wine stain (PWS) is a congenital capillary malformation that does not resolve spontaneously, causing physical and psychological burdens to patients. In this study, we used the Pediatric Dermatologic Quality of Life Index Questionnaire, PedsQL, and the Family Dermatologic Quality of Life Index Questionnaire to evaluate the impact of PWS on the quality of life of children and their parents. TThe results revealed a significant positive correlation between the quality of life of both children with PWS and their parents. An increasing number of PWS photodynamic treatments negatively affected the quality of life of affected children. Patient age was positively associated with parental quality of life, and it had a greater effect on mothers’ vs fathers’ quality of life. In conclusion, the impact of PWS on the quality of life of patients and their parents was clinically significant and significantly affected by treatment.

Source: Photodiagnosis and Photodynamic Therapy

DOI: 10.1016/j.pdpdt.2025.105118

Author: Dandan Che

Institution: Qilu Hospital of Shandong University

Language: English

Topic: Vascular Malformations and Hemangiomas

Subfield: Surgery

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $2,610