P-186 Coping with caregiving among primary family caregivers of older adults with serious medical illness: a mixed-method study
Year: 2025
Type: conference-abstract
Abstract: Background Caring for older adults with complex needs is an increasing public health concern. Primary family caregivers often assume caregiving roles due to cultural expectations and limited availability of care services. While caregiving can be rewarding, it often leads to emotional, physical, and financial strain. Although the burden of caregiving has been widely acknowledged, less is known about the long-term coping strategies caregivers use, how they prepare for future care needs, and how they navigate support systems within healthcare and the community. Aim To explore the challenges faced by primary family caregivers, their coping strategies, preparedness for future care, and knowledge of or access to available care resources. Methods A mixed-method study included an online survey with 40 adult primary family caregivers of individuals with serious illness, followed by 12 semi-structured interviews. The survey investigated key areas including caregiver roles, social support, coping mechanisms, preparedness for future care, and overall quality of life. Descriptive statistical analysis was carried out using SPSS. Qualitative interviews were transcribed verbatim and analysed using reflexive thematic analysis to identify themes. Results The mean caregiver age was 50 years, with 82% living with the person they cared for. Care recipients had a mean age of 77 years, with 55% experiencing multimorbidity. Caregivers reported the greatest impact on their schedules and health. Acceptance, planning, and active coping were the most used strategies. Quality of life was moderate, with lower scores in social and financial domains. Interviews highlighted caregiving as a perceived family duty, with adaptive coping common and limited self-reflection. Uncertainty around disease progression was a major stressor. Many caregivers were aware of resources but did not always utilise them. Conclusion Caregivers face financial hardship, social isolation, and emotional and physical stress. Despite using adaptive coping strategies, support for caregivers remains limited, especially in emotional, social, and financial aspects.
Authors: Cara Bailey, Muzeyyen Seckin, Saffa Fraz
Institution: University of Birmingham
Language: English
Topic: Nursing care and research
Subfield: Pharmacy
Field: Health Professions
Domain: Health Sciences
Open Access status: gold
OpenAlex ID: W4416469495
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