Patient education and self-management in interstitial lung disease: why and what, now how?
Year: 2025
Type: article
Abstract: Extract Pulmonary fibrosis, also termed fibrotic interstitial lung disease (ILD), is a complex chronic health condition with a multitude of biopsychosocial determinants and impact on patients and their caregivers [1, 2]. Thus, patients play an integral role in the optimal care of pulmonary fibrosis. People-centred care is the core of modern medicine, which is rooted in the provision of respectful holistic care through equal patient partnership with empowerment and active participation [3]. This concept evolved from “patient-centred care”, which was first coined in the 1950s, with the shift of focus away from the sick role to the emphasis on personhood for a meaningful life [4]. Unquestionably, patient education is the fundamental first step toward people-centred care, as adequate patient knowledge and skill levels are required for shared decision-making and engagement in clinical care. This is particularly important for pulmonary fibrosis, which is not a common disease with high public awareness. Patients with pulmonary fibrosis and their caregivers have consistently expressed educational needs to enhance their disease understanding and ability to perform self-care activities [5–8].
Source: ERJ Open Research
Author: Yet H. Khor
Language: English
Subfield: Pulmonary and Respiratory Medicine
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $808
OpenAlex ID: W4416538526