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Exploring the Coordination of Cancer Care for Teenagers and Young Adults in England and Wales: BRIGHTLIGHT_2021 Rapid Qualitative Study

Year: 2025
Type: article
Abstract: BACKGROUND: Commissioning of 'joint care' across teenage and young adult (TYA) principal treatment centres (PTC) and regional designated hospitals was introduced to enable cancer care closer to home, while providing support through the TYA multidisciplinary team. We aimed to explore the processes being used to enable inter-organisational collaboration under joint care models through rapid ethnography. METHODS: Healthcare professionals in TYA PTCs in England and Wales between June 2022 and December 2023 were identified by the TYA lead in each PTC as delivering TYA cancer care. Semi-structured interviews were conducted virtually or by telephone based on the structuration model of collaboration proposed by D'Amour. Data were analysed against the model through framework analysis. RESULTS: Our study highlighted variation across the different dimensions of inter-organisational collaboration. We found that healthcare professionals delivering TYA cancer care were working toward a shared goal but this was not always achieved. Social interaction between professionals was required to develop relationships and trust, but opportunities for social interaction were not regularly available. Processes for sharing information were not streamlined, so there were instances when information could not be shared between organisations. Interventions to achieve coordinated care, such as an outreach team, supported the delivery of joint care but these were not available in every region. While there were some levels of leadership within aspects of services, there were limited examples nationally or across geographical regions, which hindered the development of coordinated care. CONCLUSIONS: Coordination of care is mostly developing; however, the shared vision and goals dimension did achieve full active collaboration. The implementation of a service specification will address regional leadership requirements, but resources are required to extend the delivery of interventions to support coordination and collaboration, allowing the commissioned model of care to be delivered safely.
Source: Cancers
DOI: 10.3390/cancers17233874
Authors: Elysse Bautista-Gonzalez, Rachel M. Taylor, Lorna A. Fern, Julie A. Barber, Jamie Cargill, Rozalia Dobrogowska, Richard G. Feltbower, Laura Haddad, Nicolas Hall, Maria Lawal, Martin G. McCabe, Sophie Moniz, Louise Soanes, Dan P. Stark, Cecilia Vindrola-Padros
Institutions: University College London Hospitals NHS Foundation Trust, University College Hospital, University College London, King's Cross Hospital, University of Leeds, University of Manchester, Teenage Cancer Trust, St James's University Hospital
Language: English
Open Access status: gold
Estimated APC paid: $3,499
Funders: Nottingham University Hospitals NHS Trust, Royal Marsden NHS Foundation Trust, University Hospitals Bristol NHS Foundation Trust, University Hospitals of Leicester NHS Trust, National Institute for Health and Care Research, Department of Health and Social Care, University of Cambridge, University College London, University of Oxford, University of Nottingham, Cambridge University Hospitals, Newcastle upon Tyne Hospitals NHS Foundation Trust, Oxford University Hospitals NHS Foundation Trust, University College London Hospitals NHS Foundation Trust
OpenAlex ID: W4416945921
FWCI: 2.332
Cites: 37
Cited by: 2
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