Work

A practical step-by-step approach for patient and public involvement in eHealth intervention research: Lessons learned from three case projects

Year: 2025

Type: article

Abstract: Background: The importance of patient and public involvement (PPI) in research is increasingly acknowledged. PPI is a collaborative approach in which research is conducted with or by end-users. It can enhance research quality and benefit the involved end-users. However, involving end-users in the non-linear and often interdisciplinary process of eHealth development can be challenging. While many resources on PPI exist, a functional and practical overview tailored to eHealth research is lacking. This paper presents a step-by-step approach to support PPI implementation in eHealth intervention research. Methods: Three (ongoing) eHealth projects, each targeting a different population and applying different forms of PPI, informed the approach development. It was iteratively refined based on insights gained from these projects and feedback from other researchers and end-users involved in one of the projects. Results: Each step includes recommendations, lessons learned, case examples, and relevant resources (e.g., literature, websites). Conclusion: The approach integrates literature with practical, field-based insights. We hope that the approach inspires and supports researchers in implementing meaningful PPI in research.

Source: Internet Interventions

DOI: 10.1016/j.invent.2025.100896