Work

Patient awareness, involvement, and learning needs in health technology assessment – a survey of patients, caregivers, and patient advocates

Year: 2025

Type: article

Abstract: Introduction Patient involvement in health technology assessment (HTA) is nascent globally especially in Asia. The aim was to assess patient awareness, involvement, and learning needs of HTA, particularly in Asia. Method An online survey assessed HTA awareness, involvement, and learning needs among patients and caregivers across 33 countries from October 2021 to July 2022. Results The survey of 170 participants (127 Asians, 43 non-Asians) revealed that 52.3 percent (89 of 170) were unaware of HTA, only 14.1 percent (24 of 170) engaged in HTA, and only 9.3 percent (15 of 161) had received training. The Asian group exhibited significantly lower HTA awareness (mean score 24.6 vs. 30.4, p < 0.05) and had lower participation rates in HTA discussions (10.2 percent, 13 of 127) compared to the non-Asian group (25.6 percent, 11 of 43) ( p < 0.05). Among participants without prior HTA training, 68.5 percent (100 of 146) expressed a learning need. Conclusion Patient awareness and involvement in HTA were low globally, particularly in Asia. There was a strong patient learning need for HTA globally.

Source: International Journal of Technology Assessment in Health Care

DOI: 10.1017/s0266462325103346

Authors: Sihui Zhou, Mabel Wan Chi Sim, Zann Sue Ting Foo, Dani Mothci, Sita Ratna Devi Duddi, Kok Hian Tan

Institutions: Duke University, SingHealth, SingHealth Duke-NUS Academic Medical Centre, Duke-NUS Medical School

Language: English

Topic: Mental Health and Patient Involvement

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $3,550