Work

Report on Consensus Policy Recommendations for Data-sharing, Access and Use Governance Policies (D6.3)

Year: 2024

Type: article

Abstract: IDERHA is a European public-private partnership launched in April 2023. This pioneering project aims to create an open platform designed to enable connectivity, access, sharing, use and reuse of digital health data to maximize their value for patient care and medical research. In addition, IDERHA's policy recommendations will enhance regulatory and HTA decision making, facilitating access to digital health innovations for patients and health care professionals. The objective of this report is to outline the preliminary thematic areas regarding data access, data use and governance policies in which we believe consensus recommendations are required.

Source: Zenodo (CERN European Organization for Nuclear Research)

DOI: 10.5281/zenodo.14639926

Authors: Kartschmit, Nadja, Stamm, Tanja, Morasek, Kathrin, Cresswell, Katharine, Claire, Ravinder, Bilal, Omnia, Shinkins, Bethany, Dawoud, Dalia, Lumsden, Rebecca, Clemente, Amaya, Terkildsen, Morten Deleuran, Groth Jensen, Lotte, Hansen, Rasmus Mølgaard, Nielsen, Camilla Palmhøj, Peeters, Rita, Muehlendyck, Christian, Colvin, Heather, Bardaji, Maria, Juknat, Ulrich, Kalra, Dipak, Singleton, Peter, Gribbon, Philip, Funck-Hansen, Anne, Hentinen, Anniina, KEMENYASH, NATALIYA

Institutions: Ludwig Boltzmann Gesellschaft, National Institute for Health and Care Excellence, University of Warwick, Sanofi (France), Aarhus University, University of Copenhagen, Johnson & Johnson (Germany), Fraunhofer-Gesellschaft, Takeda (Switzerland)

Language: English

Topic: Electronic Health Records Systems

Subfield: Health Information Management

Field: Health Professions

Domain: Health Sciences

SDGs: Partnerships for the goals, Industry, innovation and infrastructure, Good health and well-being

Open Access status: green

Funders: UK Research and Innovation, European Commission

Awards: Integration of heterogeneous Data and Evidence towards Regulatory and HTA Acceptance, G8950034234

OpenAlex ID: W6911974257

FWCI:

Cites:

Cited by:

Related to: