Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: results of a Rare Barometer retrospective patient survey
Year: 2024
Type: other
Abstract: “Earlier, faster and more accurate diagnosis”. We are delighted to share the results of the the recent Rare Barometer survey, developed by the IRDiRC PACC member organization EURORDIS-Rare Diseases Europe, which shows that the average rare disease patient in Europe waits nearly five years for a diagnosis. Read the news announcement published by IRDiRC – International Rare Diseases Research Consortium on 8 July 2024.
Source: OpenEdition (OpenEdition)
DOI: 10.58079/125v9
Author: Lsgilbert
Language: English
Topic: Genomics and Rare Diseases
Subfield: Genetics
Domain: Life Sciences
Open Access status: green
OpenAlex ID: W6917746219
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