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The Good, the Bad and the Public: Effective Involvement in data-centric research

Year: 2024

Type: article

Abstract: Bringing the public voice into frontline research is an NIHR priority. Researchers regularly acknowledge that PPIE input improves both work and outcomes. Public participants are keen to influence the direction of research. In the AI space, with its issues of contested data, trust and transparency, establishing a meaningful dialogue between different constituencies takes on special importance. So why is PPIE often bland, ineffective or just goes badly wrong? This talk was presented as part of the AIM RSF Open Invitation Seminar.

Source: Zenodo (CERN European Organization for Nuclear Research)

DOI: 10.5281/zenodo.13933489

Author: Alvarez Nishio, Anica

Language: English

Topic: Mental Health and Patient Involvement

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

Open Access status: green

OpenAlex ID: W6930694192

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