Enhancing Diversity and Quality in Health Data
Year: 2024
Type: article
Abstract: This paper addresses the long-standing disparities in health outcomes and access to healthcare experienced by ethnic minority groups in the UK. It highlights the challenges posed by the inconsistent collection and quality of ethnicity data, which became particularly evident during the COVID-19 pandemic. The paper presents key findings from the UK Health Data Research Alliance's Special Interest Group on Ethnicity Data Coding Standards, formed to address concerns about poor data quality. It offers recommendations to improve the consistency, transparency, and standardisation of ethnicity data collection across health and social care. The goal is to enhance data accuracy and completeness to better understand and address ethnic inequalities in healthcare.
Authors: Quattroni, Paola, Routen, Ash, Alderman, Joe, Argent, Claire, Cusworth, Samuel, Dambha-Miller, Hajira, Denniston, Alastair, Drummond, Rose, Ganguli, Poushali, Hamilton, Nicola, Ideh, Uwaye, Khalid, Sara, Kwok, Aden Chun Hei, Laws, Elinor, Liu3, Xiaoxuan, Nafilyan, Vahe, Palmer, Jo, Pineda-Moncusí, Marta, Sampri, Alexia, Tibble, Holly, Torabi, Fatemeh, Valabhji, Jonathan, Welsh, Claire, Withrow, Diana R, Wood, Angela M, Akbari, Ashley, Khunti, Kamlesh
Institutions: Health Data Research UK, University of Leicester, University Hospitals Birmingham NHS Foundation Trust, University of Birmingham, University of Southampton, Office for National Statistics, King's College London, University of Oxford, University of Cambridge, National Institute for Health and Care Research, British Heart Foundation Centre for Cardiovascular Science, University of Edinburgh, Swansea University, Chelsea and Westminster Hospital, Imperial College London, British Heart Foundation
Language: English
Subfield: Health Information Management
Field: Health Professions
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W6949109992