Work

Governing Digital Health Data: A Public Values Perspective

Year: 2025

Type: article

Abstract: Governments are adopting digital health (DH) to capture patient data and applying advanced analytics to ‘learn’ from that data. This has rendered DH data governance approaches insufficient and led to public sector decision-makers using health data without considering the public, resulting in harm and eroding trust. Yet, public sector organizations are responsible for upholding public values. How then can governments govern DH data in line with public values? To provide insights, we propose a multi-phase, mixed-methods design embedded in a public health system to identify the public’s values implicated in DH data governance and their (mis)alignment with other stakeholders’ values. Ultimately, our research will contribute to literature and practice by explaining the complexity of appropriately governing DH data and by providing the foundations for research to create a public values-oriented approach to governing DH data.

Source: Journal of the Association for Information Systems

Authors: Eden, Rebekah Gillian, Burton-Jones, Andrew, Head, Brian W., Pole, Jason, Richards, Bernadette, Vincent, Michael, Pointon, Keren, Donovan, Raelene

Institution: The University of Queensland

Language: English

Topic: E-Government and Public Services

Subfield: Political Science and International Relations

Field: Social Sciences

Domain: Social Sciences

SDGs: Good health and well-being, Peace, justice, and strong institutions

Open Access status: green

OpenAlex ID: W7010069524

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