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Cystic Fibrosis Registry of Ireland Annual Report 2024

Year: 2025

Type: article

Abstract: The annual report of the Cystic Fibrosis Registry of Ireland (CFRI) provides a comprehensive overview of the health status, clinical outcomes, and demographic characteristics of people living with Cystic Fibrosis in Ireland. It summarises key data on prevalence, treatment patterns, and long-term trends; helping to monitor disease progression and the impact of therapies. The report also highlights improvements and ongoing challenges in patient care, supports healthcare planning, and serves as a valuable resource for clinicians, researchers, policymakers, and patient advocacy groups working to improve quality of life and outcomes for individuals with Cystic Fibrosis.

Source: Zenodo (CERN European Organization for Nuclear Research)

DOI: 10.5281/zenodo.17714781

Authors: Kirwan, Laura, O'Regan, Paul, Doherty, Robyn, Fletcher, Godfrey, Joshy, Soumya, Linnane, Barry, McNally, Paul, Plant, Barry J, McKone, Edward F

Institutions: University College Dublin, Cystic Fibrosis Registry of Ireland, University Hospital Limerick, Children's Health Ireland at Crumlin, Cork University Hospital, St. Vincent's University Hospital

Language: English

Topic: Cystic Fibrosis Research Advances

Subfield: Pulmonary and Respiratory Medicine

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

OpenAlex ID: W7107857158

FWCI:

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