Work

Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis

Year: 2025

Type: article

Abstract: In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.

Source: Indian Journal of Medical Ethics

DOI: 10.20529/ijme.2025.096

Author: Charan Mahananda

Institution: Institute of Public Health Bengaluru

Language: English

Topic: Tuberculosis Research and Epidemiology

Subfield: Infectious Diseases

Field: Medicine

Domain: Health Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: diamond

Funders: Wellcome Trust, Department of Biotechnology, Ministry of Science and Technology, India, The Wellcome Trust DBT India Alliance